It’s a Beautiful Day in the Neighborhood, Pt. 4

“When we look for the best in people we happen to be with at that moment, we are doing what God does…participating in a sacred act…” –Fred Rogers

Hello, readers. So tonight I am busting out of my drinking comfort zone…I stopped at local brewery, “Seedz,” (who, by the way, are in the running and currently in the top 5 for USA Today’s BEST NEW BREWERY. Pretty damn impressive!) I went there because I have these bookmarks advertising my pet services, and they are a dog-friendly place. And, guess what? Unlike the snooty-ass “local” bookstore, they HAPPILY took my little dog mug brimming with my pathetically amateur marketing attempts. Even put it in a window next to the free papers. And, I met someone at the bar with a dog who took my card, too. Win-win!

I went home with a bottle of “Blended Saison Ale, re-fermented with rhubarb, cherries, and sea salt.” Now, does that not sound delish? Well, it might be, minus the Saison part. Bahaha!! Really, though, both John and I are decidedly not fans of brews with anything Belgian-y in them, and this ale has Belgian yeast. Which husband describes quite accurately: “Belgian beers are like drinking sweat socks.” Damn him, he’s right again…but “Kriek et Rhubarbe” is going down okay, since I’m taking it in with leftover pot roast, whose rich burgundy sauce is masking any lingering foot smell and taste.

Roy and I last meet in his expansive sunroom, an addition he had put on to his house some time ago. It’s filled with plants and warmth, which is just as he wants it. I tell him I’ve been reflecting, and I make an observation.

“I feel like you became acquainted with loss early and often, that death was a theme in your life long before it should’ve been.”

“Yes,” he says. “By the time I moved here permanently, I’d lost all my immediate family. In the years 95, 96, 97 and 99.”

Boom, boom, boom, boom. He states it without a trace of self-pity. Sprinkled throughout the next decade would be endless losses of the elderly he’d taken care of, as well. And particularly difficult, the loss of his beloved friends, Les and wife Annabelle.

I comment how traumatizing this is. My mom, mother-in-law, and father, all gone in a short span, so I know.

“It really was. And during those nineties years I was also waging war with my workplace, who were actively trying to kill us all off. Make us disappear so there wouldn’t be pensions to pay.”

I don’t say it, but I wonder if that pressure, grief, and strain helped to create a fierce internal battle, resulting in his eventual diagnosis. To simplify, Waldenstrom’s is a type of lymphoma, in which cancer cells crowd the healthy ones out of the bone marrow. It’s timeline and trajectory is poorly understood, even among oncologists. At that point Roy spent the majority of his free time doing research on treatment, so It’s not an exaggeration to say he knew more about his disease than the doctors treating him.

He was 57 when diagnosed. The fact I am a year older does not escape me.

“What was your reaction? Were you angry at God?” I ask him.

He ponders this. “No. My attitude then and now was, “it’s life on a planet. We’re all gonna go. I knew with my personality, I needed to tackle it as if it were a problem like anything else. I had to look at it objectively and see what could be done.”

He rejected all options except that of biologic therapy, and even that, he put off for a year. His doctors had a fit, he says. The reason for the delay, which he says made not one bit of difference in the end? His best friend Les was terminally ill.

“I had to,” he says. “Les got his lung cancer diagnosis, and the outlook was dire. From what I could see, he’d decline much more rapidly than me. In various ways, he and Annabelle needed my help.”

Roy ended up doing twenty-nine cycles of Rituxan and steroids, a savage routine that in his words, “merely prolonged the eventual torture, sapped my strength, and f-ed up my heart.”

I ask him if he’d do it again, which is a hard question to answer.

“A million dollars worth of worthlessness and wrecking my body? No. Except…it did buy me time. I settled my affairs the way I wanted, and assisted Les and Annabelle in doing the same. Not everyone can say that.”

The treatment “cut off the head of the dragon, where two more grew back.” He’s tired of fighting the beast. After seventeen years, who wouldn’t be?

The break with the church began with fissures that ended in a full-on chasm.

I ask him more about how he went from a most devoted catholic, to where he is now: still deeply, highly spiritual, but done with all the trappings. Much of this I already know, but I want to clarify.

Basically, it came down to two priests: one as arrogant and unrepentant as the day is long, and one so seriously whacked out he went to jail. The former actually refused to travel twenty minutes on a winter day to give a parishioner her last rites. At the hospital, Roy called the priest on their behalf.

“Tell them to find someone local,” was his response. Roy was apoplectic. “This is literally his job, and he couldn’t even make the effort to call them himself or make arrangements.”

This was one act in a long line of rudeness, much of it witnessed by me as well. The worst part was that the priest couldn’t do what he was always harping on his flock to do: “Apologize, be humble.” And if there is one thing I can’t stand, it’s a hypocrite. That was the beginning of the end for me, and it hurt. I’d willingly converted to catholicism, John’s family’s faith, so that we could be united. To provide a stable foundation for two growing boys in an increasingly hedonistic and anti-religious world. I found so much there; a wonderful community, comforting rituals, and a bedrock of support for marriage and families. And the person I loved and admired more than anyone, my mother-in-law Mary, was like Roy. As holy as they come. I did everything I could to follow in those footsteps, swallowing my objections to the doctrines regarding the role of women and gays in the church. Then the pedophile scandals blew up. I ask Roy if that played a part in his fracture, because it certainly did in mine.

“Dear God, yes. The entire organization is corrupt from its head to its toes. It’s a funny thing when you step back and take off the blinders. Which they don’t want you to do, of course. But I saw it all with a clarity that astounds me now.”

“How do you respond to those who say that a few bad apples are not the church? That they don’t represent the true teachings?”

He becomes animated, as he often does during our talks.

“It’s not just a FEW bad apples they shuffle about. There are hundreds of thousands. Even the good ones, and I believe there are honorable priests, don’t stand a chance. The church has helped produce and facilitate this evil.”

It’s no secret the coffers and influence of the Vatican are vast.

I comment that I miss our lovely parishioner friends, and the power of prayer in all these Godly people gathered together. For me, it’s never been so black and white.

But Roy is resolute, adamant in the rightfulness of his actions.

“I don’t judge or wish anyone ill who still adheres to that life. For me, my eyes were opened. I still pray. I still believe in God. And I still help others, although that capability is diminishing.”

Except that it hasn’t. The majority of his estate’s proceeds are destined for St. Jude’s foundation, a generous gift that will keep on giving long after him.

I envy his skill in not second-guessing, his confidence in his path. A trait my husband shares, I might add. I ask him if he has any life regrets.

“Only one. I would’ve liked a family. When I was lying in bed a month ago, unable to move enough to reach the phone, I’m thinking, “I have nobody.”

I want to say, you have me. And John. But we know it’s not the same. So instead I say, “You know there’s no guarantee that any sons or daughters would’ve been sitting there.”

He laughs. “Do I ever. I’ve watched the dynamics in my friends’ lives. But I will admit, during one of those horrible nights, I had a come-to-Jesus meeting. I had a talk with God. We set things straight.”

“And?”

“It was an epiphany. I came out of it and felt cleansed…through the fires of adversity.”

I smile. “I can tell you’re much less agitated.”

“I am. I’m at peace.”

“What changed?”

“Well, the catharsis snapped me out of my anger. Truthfully, I think a lot about St. Therese. She’s quoted as saying she’ll spend her time in heaven doing good on earth, and that’s what I envision. I welcome and look forward to the experience.”

Continuing what we started in this life, without the doubt, judgment, and disappointments of an earthly existence. That’s a good place to be, I think. I ask him how he’d like to be remembered.

“With love. That’s all it’s about, isn’t it? Learning to love and be loved?”

Yes, I say. I hope I’ve contributed to that desire with these posts, and that you, my friends, have enjoyed the journey. I tell Roy the last one in the series can be when he’s departed, but we both laugh.

“I mean, I could go before you, ” I say. “You never know.”

We don’t. So until next time, provided I don’t meet my maker before, here’s to love, and being remembered fondly. Cheers!

Standard

It’s a Beautiful Day in the Neighborhood, Pt. 3

“Our society is much more interested in information than wonder, in noise rather than silence, and we need a lot more wonder and silence in our world…” -Fred Rogers

Friends, tonight’s brew features the forgettable and bland “Imperial winter pilsner” put out again by Short’s, ingested because once more it’s a sunny February day in the sixties. While this weather is stunning, the beer is meh. I’ve already deviated from the pattern and switched to Aldi’s $3.50 red wine, by the name of “Winking Owl.” I’m no wine connoisseur, (nor can I spell it. I’ve had to google connoisseur three times to get it right), but it’s drinkable enough. And, anyway. Where can you find drinkable alcohol for less than four bucks? I probably won’t have too much though, because I gotta tell you. This biography stuff isn’t exactly a piece of cake. You try condensing seventy three years into a handful of blog posts, get the details right, and attempt to make it somewhat riveting. I’m not complaining, mind you. This WAS my idea. So let us hope I rise to the challenge!

The next time I meet with Roy, he’s like a changed person altogether. The catheter was removed, swelling decreased to manageable levels, and his treasured mobility was back. We laugh that he’s like a cat with nine lives. Perhaps due to his hearty heritage he is seemingly indestructible, since the incidents I’ve detailed are actually just a couple among multiple travails. This time, after weeks of staring at his bedroom ceiling, he was thrilled to be able to get in the car and just sit in the parking lot at the beach. Proving once more, when you emerge from darkness it’s the simple things that sustain you. Well, that, and a few dazzling memories. And Roy has them; mind-bending experiences he says he mulls over the meaning of every day.

I’ve talked about the importance of Roy’s catholic faith, and how he managed to implement it so effectively. He’s someone who for real, walked the walk. Like so many similarly devoted, he looked for paths to strengthen his beliefs and to seek answers. One such avenue was to make a pilgrimage to the village of Medjugorje, located in Bosnia-Herzegovina (a republic of the former Yugoslavia). Not only did he complete the journey once, but three times: 1989, 1990, and 1991.

Medjugorje, located in a predominantly catholic region, has become famous for six young people who claim to have been visited there by the Blessed Mary. On June 24, 1981, she appeared and told the “visionaries” that God sent her to help convert hearts back to Him. Ever since, there have been thousands every year who trek the passage, hoping for the same encounter.. Roy says that each time he went was a totally different experience.

“Everyone who’s been there, says the same,” he tells me. “People who even go together, feel the effects in utterly distinct and separate ways. It’s inexplicable.”

For him, it was life-changing. Even with his strong religious beliefs, he’s a man firmly rooted in science, so there presents a paradox. To be human is to be presented with them, day after day after day. He says the beams of light he witnessed defied physics in every imaginable form; they could not be adequately explained or understood. Which I think is kinda how miracles work, but funnily enough, nobody has reported specific miraculous acts at Medjugorje.

Which isn’t to say they didn’t happen.

We talk about how not being married allowed him the luxury of this kind of travel, and the freedom to use his gifts within a plethora of circumstances.

“Yes,” he agrees. “But I worked hard, saved, and sacrificed. I came from nothing. I didn’t buy fancy cars, houses. I viewed extravagance as a sin. So I was happy to apply my “time, talent and treasure” where ever I saw a true need.”

And if your eyes are open, the need is bottomless. Consequently, I don’t think Roy fully realizes how special his willingness to step up is. So many of us bumble around, squandering our resources on meaningless ventures that bring temporary joy. We wear blinders to justify our behavior, our voting, our parenting, every choice, never stopping to examine our whys, because if we did, then what? It might be revealed we are idiots, that’s what. Instead, we get bogged down in questionable commitments, trying to control and chase people and mismatched dreams down, never spending more than a few minutes worrying about anything other than our own problems. If we do take a minute to peep outside our bubbles, it’s through the lens of judgment as we sit on ivory towers. And this goes on interminably, until time and/or money runs out.

Sorry, I know that was harsh. If you’re reading this, I don’t think you’re an idiot…but maybe if you find it difficult to figure out your own crap, here’s an easy decision. The next time you see a homeless dude, toss him a ten and don’t stop to fret about whether he’ll use it to buy drugs. So what if he does? He might also get a sandwich. If you believe that Jesus is the vine and we are the branches, you try to do things that carry out his Word, imperfect as those actions may be. And Jesus is gonna help the sketchy guy and not ask a bunch of judge-y questions.

Okay. I’m putting the wine away now. I’m no bible thumper and you might be an atheist. Sometimes I just get disgusted at how we waste what little impact we have on this earth, and I include myself in this rant.

So about the time running out deal. In the eighties, Roy had a beloved friend, Devin. A man in fact, whose hourglass was doing exactly that by 1991.

“We knew he was at a point where medically, nothing more could be done. So I took him to Medjugorje and he, too, came away from it transformed. Filled with comfort and peace that stayed with him until he passed.”

Of course, we don’t have to travel halfway around the world to experience this, but talk about a powerful testimony to friendship. And devotion to spiritual healing.

Roy discovered more revelations when traveling to Israel in 1992. It’s amazing to him that he stepped onto the very Holy Land that is being burned as I write this. He can’t discuss any of the current political crisis because, as he says, “I cannot allow my mind to go there. I have to protect my peace.” At the time of that trip there was relatively little unease going on, but plenty of jaw dropping personal moments.

“One fact I found incredible was how tiny the Sea of Galilee is…the size of a small lake, if you can believe it.”

It was a lot to take in. In particular, a transcendental moment in which he observed three cloud formations. All of them in varying positions, but all in the shape of a cross. It was long before his cancer diagnosis, but he believes they were shown as sustenance for when the suffering happened. So he wouldn’t lose faith. And in a highly surprising turn of events, the coming years would disclose his convictions to not only be lost, but crushed, deconstructed and re-formulated. Even more ironic, my spiritual path converged with his on this same bumpy, painful road.

As he puts it, “I had to leave organized religion to still follow Christ.”

Part four will take a look at that period, for both of us. And more. Please join us! Cheers!

Standard